Riley's Pages :: Riley's Life With Juvenile Dermatomyositis
Riley's Life With Juvenile Dermatomyositis
Riley's Life With Juvenile Dermatomyositis
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In memory of Marty Allen May 25, 1949 - July 29, 2003
Our users have posted a total of 130 articles within 97 topics
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Welcome to Riley's Web Diary

Code Amber - The Web's Amber Alert System

Great write ups on blood tests, Sed Rates & Lyme Disease
I found these write ups and received permission to reprint them:

Blood Tests
ESR (Erythrocyte Sedimentation Rate)
Lyme Disease

They can also be found in the Knowledge Base
 
Posted by Mike on Sat Feb 05, 2005 5:12 PM    
[ 0 Replies, 795 Views | Comment | Archives ]

Heliotrope and Gottron Papules rashes
I have added photos showing the Heliotrope rash and the Gottron Papules rash that were present on Riley when he was diagnosed with JDMS. By posting these, hopefully some parent will see them and recognize them. Getting a child diagnosed and treated early is key!

The photos can be found HERE or at Riley's photo album
 
Posted by Mike on Sat Dec 11, 2004 10:35 PM    
[ 0 Replies, 842 Views | Comment | Archives ]

Welcome to Riley's Website
Hello, Welcome to Riley's Website. This is a diary of his disease, Juvenile Dermatomyositis (JDMS). Riley is an 9 year old boy who loves LOTR, Yugioh cards, drawing/art, nature, bugs and the outdoors. He is our middle son with an 20 year old and a 8 year old brother. Riley was diagnosed with JDMS in February of 2003. We welcome you to register and share your experiences with us.

Riley's Parents
 
Posted by Mike on Fri Dec 03, 2004 5:29 PM    
[ 0 Replies, 429 Views | Comment | Archives ]

Juvenile Dermatomyositis Web Links!
These are web pages that offer information on Juvenile Dermatomyositis. Please visit them:

Myositis Support Group Website and Discussion Board (FORUM)
The Myositis Association
The Myositis Association (FORUM)
Cure JM
Dr. Lauren Pachman
Dr Lauren Pachman's CV (PDF)
Natasha's Page - New Zealand
How Rheumatologists Use Chemotherapy
Children's Memorial Hospital - Chicago, IL
Samuel’s JDMS Website
Julia’s JDMS Website
JDMS Kids
Jordan’s JDMS Website
Abby’s DM Pages
Pediatric Rheumatology Page
Juvenile Dermatomyositis, A Review
Clinical Outcomes in Juvenile Dermatomyositis
American Academy of Family Physicians: Dermatomyositis
IVIg Article References
Muscular Dystrophy Association
Arthritis Foundation
Skin Disease In Dermatomyositis
Skin Changes
Dermatomyositis Skin Problems Slideshow
 
Posted by Mike on Thu Jan 22, 2004 11:36 AM    
[ 0 Replies, 554 Views | Comment | Archives ]

Latest Posts
  JDMS rash??
Tue May 09, 2006 10:57 PM
Last Post By: Avasmom
  New here....23 mnth old daughter
Sat Apr 29, 2006 10:49 PM
Last Post By: Avasmom
  June 13, 2005
Sat Jul 23, 2005 1:36 AM
Last Post By: Anonymous
  CureJM bracelets are in!!!!!!!!!
Fri Apr 08, 2005 10:40 AM
Last Post By: Mike
  March 31, 2005 Riley is flaring again
Thu Mar 31, 2005 10:10 PM
Last Post By: Mike

Random Photo

Poster: MikeW
Pic Title: Riley at New Pond Farm November 2001
Posted: Wed Aug 13, 2003 2:40 PM
[ Comment ]


 


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